Olivia’s Story
Olivia was born with a rare form of ichthyosis — a lifelong genetic skin condition that affects only a small number of people worldwide. From the very beginning, she has shown a strength and resilience that inspires everyone around her.
Olivia spent the first months of her life in hospital before she was able to come home. Living with ichthyosis means her skin requires constant care and protection. Everyday life involves ongoing routines, careful management, and adapting to challenges that many families never have to think about.
Despite this, Olivia approaches life with warmth, determination, and a smile that lights up the room.
Why For Olivia exists
For Olivia was created to raise awareness of ichthyosis and to support families who are living with the condition every day. Through community fundraising events and ongoing support, the aim is to make a meaningful difference — not just for Olivia, but for others affected by ichthyosis.
Funds raised through For Olivia support the Ichthyosis Support Group (ISG), which provides vital resources, community support, and funding for research into improved treatments and long-term care.
How support helps
- Fund research into better treatments and understanding of ichthyosis
- Support families navigating the daily realities of living with a rare condition
- Raise awareness so no family feels isolated or forgotten
Every contribution, no matter the size, helps move things forward — one step at a time.
Thank you for taking the time to read Olivia’s story and for supporting families living with ichthyosis.
Love,
Jack & Sian