About Ichthyosis
Ichthyosis is a group of rare genetic skin conditions that affect how the skin grows and sheds.
It often causes skin to become very dry, thickened, and prone to cracking. Severity and daily impact can vary widely — from mild discomfort to more complex, ongoing care needs.
Day-to-day impact
- Regular moisturising and structured skin-care routines
- Managing discomfort, overheating, or skin sensitivity
- Extra time, planning, and cost for daily care and specialist products
- Ongoing medical support, depending on severity and type
Why awareness matters
Because ichthyosis is rare, many people — including schools, workplaces, and even healthcare professionals — may not immediately understand its impact.
Raising awareness helps reduce misunderstanding, improves support, and ensures families don’t feel isolated while navigating daily challenges.
Trusted resources
If you want to learn more, these are good starting points:
Learn more about Olivia
Read Olivia’s story and why For Olivia exists — plus how you can help.